This is a super rant post. EIPIC is this early intervention program for children with special needs. I have many bones to pick with how the system is run. Step 1: Get referred for EIPIC. this can come from either the neuro/genetics or whoever thinks the child needs early intervention. Step 2: See a Medical… Read More EIPIC
We were sent to do a hearing test 2 weeks ago and Aaron failed the right ear.. The clinicians were very meticulous and kept trying about 3 times and they told me that they think that he is impaired on the right. So, an ENT specialist appointment was made and we saw her yesterday. She… Read More And now the right ear..
I had a pretty rough day on the 30th of Jan. We had 3 important medical appointments that day. In the morning we met with the geneticist who had to explain the Chromosomal Microarray Analysis (CMA) Report which showed a Loss of cytoband Xp22.33/Yp11.32 and an absence of heterozygosity 2q32.3q33.1 which if you really ask… Read More Was is God or was it the Devil?
Thats what everyone says right? To “try” to be impartial, not to show expectation on gender.. Bullshit! I always wanted boys. It’s just something i hoped. If Aaron was a girl, it would be natural for me to try for another boy. So, woohoo.. congrats to me!! I have a boy!! So once we get… Read More As long as the baby is healthy..
Our neuro decided not to refer us to early intervention (EIPIC) because she feels that Aaron has “a chance to be normal”. So we are still stuck with appointments of physiotherapy, hydrotherapy as well as speech therapy (starting in Jan 2018) and occupational therapy (starting Mar 2018) on a weekly basis. Costs aside, time aside..… Read More Expectations
This is my version of the story and my point of view. Maybe, she just thinks im horrible too. We got a helper to care for Aaron. 1st one was this fresh myanmar helper and she came 1 month b4 Aaron was born. She was very rough with everything, using brute force on even removing… Read More The Helper who didn’t help.
I’m grieving the perfect child that I didn’t get. It hurts.
I don’t want to have to spend more of my energy typing about people who do not deserve my time. So, ya.. my helper sucks. That said, i keep looking for alternative care giving options. Like looking for a new helper but telling the agency the truth of my family profile which is family with… Read More Struggles
Aaron isn’t “related” to me on social media. Which means that little of my friends know about him. Why? Because maybe i never got around announcing my pregnancy, doing a gender reveal, welcoming his birth, complain about pregnancy woes, documenting his every move. He has his Instagram account and that’s it. Because of this strange… Read More Happy 1st Birthday Aaron
Aaron was born 36wks 5days after a relatively normal pregnancy.. nothing out of the ordinary except the pains and aches. He was born on my birthday. My best birthday present. The hours that followed the birth was not fantastic… 4 hours after delivery, I started to feel an intense pain (most probably also because my… Read More The Journey