Irony + bullshit! I went to register Aaron in the Church’s childcare for 2020 Nursery programme.. without any success. Why?? Because I know, he is not ready. Then why did I still go? Because I wanted to keep all options open for him. He is non verbal, he also cannot follow instructions, he has very… Read More Mummy, you must let go..
https://www.catholicnewsagency.com/news/pope-francis-abortion-is-never-the-answer-91636 I was reading the article which was saying that abortion of babies with diagnosis of terminal illnesses is not a good reason for abortion. When I got Aaron’s diagnosis, the first thing the geneticist was asking if I wanted more kids and how the x-linked genetic problem will affect my current and future children… Read More If I had a choice
It has been particularly hard.. remember the Whole Genome Sequencing (WGS) test we took in May? The results are ready but my heart is not ready to face it. So I postponed the appointment which was supposed to be on 2nd Oct to 30th Oct.. Why you might think especially since I have been patiently waiting… Read More Gloomy
My heart melted and broke because of a little boy, Aaron. He was meant to complete our family, our hopes were for him to be the spoilt little child, loved endlessly by his siblings, the bright light and joy of our lives. Bring us all solace and unite or family.. sounds very fairy tale-y right?… Read More My Broken Heart 💔
Aaron is turning 2 middle of this month. It calls for a celebration. As usual, an intimate one with family members and we are heading to Bintan for a short getaway. I have even booked a little photoshoot while we are there. This year has been even more trying that the last.. we spent a… Read More Approaching 2..
It is hard because i am a perfectionist. Toy cars are meant to be zoomed across. Blocks are meant to be stacked. Stuffed toys are meant to be cuddled. Books are meant to be read. Instructions are meant to be followed. High fives are meant to be returned. Hugs and kisses are meant to be… Read More Why is it so hard?
You know.. what ifs are very painful. Very very painful. Some days are harder than others. Having to deal with lots of what ifs.. What if i didn’t insist on inducing Aaron and he came at his own time. Maybe then we wouldn’t have to go through the whole ordeal of “where’s Alma” (that’s the… Read More What if…
This is a super rant post. EIPIC is this early intervention program for children with special needs. I have many bones to pick with how the system is run. Step 1: Get referred for EIPIC. this can come from either the neuro/genetics or whoever thinks the child needs early intervention. Step 2: See a Medical… Read More EIPIC
I had a pretty rough day on the 30th of Jan. We had 3 important medical appointments that day. In the morning we met with the geneticist who had to explain the Chromosomal Microarray Analysis (CMA) Report which showed a Loss of cytoband Xp22.33/Yp11.32 and an absence of heterozygosity 2q32.3q33.1 which if you really ask… Read More Was is God or was it the Devil?
Thats what everyone says right? To “try” to be impartial, not to show expectation on gender.. Bullshit! I always wanted boys. It’s just something i hoped. If Aaron was a girl, it would be natural for me to try for another boy. So, woohoo.. congrats to me!! I have a boy!! So once we get… Read More As long as the baby is healthy..